With the thalassemics and their families we have been able to practice real social work. The approach is alluring because we have to deal with families coming from very diversified geographical, social and religious backgrounds: each case and each family has to be cared for alone. This requires a lot of tact and attention. Thalassemics need to be followed up in their daily life, this is why we visit their homes, schools or work places.
Hematology
All patients are closely followed by a multidisciplinary team consisting of various specialists.
Members of the multidisciplinary team undergo complete physical exams and laboratory evaluations at frequent intervals.
The mission of this comprehensive approach is to offer the most modern and effective treatment and to help young thalassemics grow into healthy, happy and responsible adults.
Blood Transfusion
With a beautiful smile and in a relaxed atmosphere, a young thalassemic is watching one of the nurses inserting the transfusion line for him.
In the CCC, blood donation is highly encouraged. The blood bank team welcomes donors and runs all screening tests to ascertain the safety and compatibility of the donated blood.
Laboratory & Blood Bank
Units of blood are routinely tested for safety against: Hepatitis B, HIV, Hepatitis C, Syphilis.
Tests are performed on an automated machine bank recommended by the American Association of Blood Bank.
Blood grouping & phenotyping
for safe transfusion
Nursing
A thalassemic child and her mother are joyfully learning how to prepare the Desferal injection.
In the transfusion unit, patients receive blood every 3 – 4 weeks under close supervision of a highly specialized team, in a friendly atmosphere.
Endocrinology
The main purpose of an Endocrinology consultation for a thalassemic patient is to early detect, prevent and treat any endocrinological complications of the disease: diabetes, osteoporosis, thyroid or any other hormonal deficiencies.
Cardiology
Goals include: following patients at the Center and screening them for possible cardiac pathology, that is known to be more prevalent among patients with thalassemia.
Ophthalmology
Screening of the first signs of thalassemic ocular complications, and the side effects of Desferal.
Dental Care
Evaluate and monitor oral health and hygiene. Dental care for preventing caries involves fissures sealant and fluoride gel, for the young until 12 years.
Nutrition
Educating patients and families about iron sources in food and how to reduce iron absorption.
Psychology
Acceptance, recognition and self determination. Stimulation of confidence; patients themselves can do something if they are stimulated and guided and given understanding and support.
Pharmacy
Providing thalassemic patients with prescribed Medicine and material.
Patients Education
Regular session given: information about the disease, importance of child’s medical treatment and psycho social follow up.
Community Awareness Building
Information about prevention thalassemia by: family planning and birth control.
Support Groups
Conscious of the importance of solidarity, Thalassemics Parents Committee play a supportive role for new families & channel feedbacks to the Center.
The young thalassemics Club fosters strength, self confidence and peace of mind among patients.
